Kaitlyn had a few things going on today. Vent is still in, she developed 2 bacterial infections and has tons of chest secretions. They are suctioning her almost hourly. Doctors are anxious to get her off the vent. She has sprinted well (practice runs), but they are afraid her secretions will be unmanageable with out the vent tube to suction them out of. She had a blood transfusion today (she's anemic, and has had a few problems with her oxygen saturation), they thought the new blood would help with her oxygen levels and it has. Other then that it is a waiting game. She is waking up more, she opened her eyes today and really looked at us for the first time since surgery! She gets uncomfortable from time to time, they are weaning her off of her pain meds hoping that will help her come off the vent. Up until now she's been pretty snowed. Today was an okay day. It could have been worse. We are praying for an excellent day tomorrow.
We are getting a few visitors over the weekend, it will be a nice distraction having them here. I probably won't get to a computer until Monday, so look for an update then.
Thanks again to our amazing support team, and the many people who are praying for our brave little girl. See you Monday!
you can do it kaitlyn! you're a strong girl! one step forward, two steps back.. we remember them well but in the end you will come home stronger and healthier and lily and I will be waiting for you!! keep fighting katie and we'll see you soon!! Lily's family is all praying for you!! angie
ReplyDeleteOh sorry to hear that she got those infections. I know it can be hard but you are doing great. I will share that Wysdom had 3 bacteria infections and stayed on the vent longer too. He had massive secreations as well. I wonder if they could get PT to help. We had PT come in and tap on the lung area to help move out the secreations and this worked really well and he turned around in a couple of days and then we were sent home. So hoping for the same quick turn around for you!!! Sending prayers for Kaitlyn and for your family in this difficult time.
ReplyDeleteIt is the longest wait, isn't it? And the added worry over the infections isn't helping. But keep faith. Your beautiful Kaitlyn will be up and at 'em in no time! I'm happy to read that she looked into your eyes. That is good for everyone, including Kaitlyn.♥
ReplyDeleteWe're keeping her in our thoughts, prayers and hearts.♥
Praying for healing, breathing independently, and smooth sailing.
ReplyDeleteAsk about ipv treatments (intrapulmonary percussive ventilation) It looks and sounds weird, but it somehow vibrates the lungs and breaks up secretions that can then be suctioned out. This worked well for Noah when he was on the ventilator. Jill
ReplyDeleteMy prayers are with your sweet little Kaitlyn! Hope to hear on Monday that she was able to wean off the vent. Enjoy your company. And remember you have lots of friends keeping you and your family in our prayers!
ReplyDeletei pray that's the last of those bacterial infections. And remember you are the mom, if you can tell shes uncomfortable, make them give her pain meds. It's important to wean her off, but not too quickly. Sounds like she's doing incredible though! HUgs and prayers continue...
ReplyDeleteInfections are no good - praying her little body keeps up the good fight and knocks them out in no time! It's so nice when they can come off the vent. Go Kaitlyn - keep up the good work little one - rest and heal, and you'll be vent free soon :)
ReplyDelete{Max had a lot of drainage, too. He almost left PICU and transferred to the regular floor with them still in.}
'them', meaning chest tubes - sorry :)
ReplyDeletehope it was a good weekend and that kaitlyn is recovering quickly :)
ReplyDeleteLots of prayers from Canada coming your way! Hang in there little sweetie.
ReplyDeleteBlair, All your friends at work are praying for you and yours. The Lord is with you and watching over you and your little angel. We are all on your side and always willing to help in anyway we can
ReplyDeleteStill praying for Kaitlyn's recovery! You are doing great, sweet little girl!
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