According to the nurses and doctors Kaitlyn's recovery is right on track. She's had a few ups and downs but apparently this is "normal." It's difficult to see her like this. They are having a hard time keeping her still and sleeping. The nurse said that this is common in kiddos with Down syndrome?! She's on several medications. Some of them include a morphine drip to control the pain along with an anti-anxiety to help calm her and an amnesia medication to help her not remember. A line that was placed in her pulmonary artery to monitor the pressures in her heart was removed this morning. This was an extra line put in to help monitor her pressures since she had a little trouble coming off of bypass after surgery. So one tube down and several to go. Its PROGRESS so we'll take it. Her next major milestone will be to start weaning her off the ventilator. Things change in an instant around here so we will see what today brings. The nurses are great. They talk about Kaitlyn's surgery like it is minor. And even though in doesn't seem minor to us it is one of the simpler surgeries compared to many of the kiddos in the Pediatric Cardio ICU. You would not believe what some of these kids have been through, soooo sad! Please continue to pray for Kaitlyn and all the other little fighters on her floor.
Below are some pictures of Kaitlyn this morning. They are a little hard to look at but let me explain why I feel its necessary to post them on her blog. When I found out about Kaitlyn's heart defect I searched far and wide looking for info about her upcoming surgery. I had read all the medical stuff and I just wanted to find things that would help prepare me for what we were about to go through. I found this on different blogs. It helped me tremendously. So if there is a family out there who follows our story who has been placed on a similar path I hope this helps them. Kaitlyn will continue to recover and each day her pictures should look better and better! Thank you to everyone who is praying for our AMAZING little girl!
Our Amazing Little Fighter!