Wednesday, July 1, 2009

Thank you!

Thank you to everyone for all your kind words, love and support! The Ds blogging community is amazing. Your blogs have become a great sense of comfort to me in the last weeks. I had become so frustrated and overwhelmed with the negative medical books I had been reading. All the questions I had pertained to living life. I found answers to my questions and much more on blogger. For the first time I was able to hear about the positive side to Ds. At the doctors office you tend to not hear much in the way of positive. I had read on someones site that what was really needed was a Ds parent advocate beside the medical professional when speaking to a new family with Ds. That is so true!

Again thank you for sharing your lives!

Jenee

16 comments:

  1. Hi Jenee! Congratulations on the upcoming birth of Kaitlyn. I like you wanted a pink little bundle of joy! At my 20-week, level II U/S we found out that I was getting my wish. Nothing else out of the ordinary showed up. Fast forward 19 more weeks and we welcomed Lily into the world. Shortly after her birth the pedi told us he suspected she had Ds. Unfortunately, this was prior to me even getting to hold her (c-section). I had a few minutes of "Why God?", but as soon as I held my beautiful little girl I knew everything was going to be ok.

    Lily is such a joy to her daddy and me. She has two big brothers who adore her too. You are in for a wonderful journey. I look forward to learning more about your family and hearing about your beautiful baby. Enjoy the rest of your pregnancy. Feel free to stop by my blog. www.awalkinlilysgarden.blogspot.com

    Hugs...Cathy and Lily

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  2. Welcome to the DS world! I have meet the most wonderful people here. Congratulations on your little one. I can't wait to "meet her" via the wonderful cyber world.
    Much love, Shelly

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  3. Congratulations!!! I have a wonderful 11 month old daughter who has Down syndrome.

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  4. Hi Jenee! Welcome to the wonderful world of blogging! I have enjoyed getting to know you and your family a little bit.

    Congratulations on your little girl! I can't wait to see pictures of her - I'm sure she will be so cute - just like her two brothers!!

    I have two boys - Caleb who is 5 and Joel who is 2. I found out through an ultrasound and later through an Amnio that Joel would be born with Ds. When I read through your posts it reminded me of how I felt during those difficult days. Now, I can't imagine my life without Joel. He brings such joy and happiness into our lives - as I'm sure your little girl will too!

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  5. Congrats and welcome! I look forward to following your journey. My son Noah is 7 and he is such a beautiful blessing to us.

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  6. hello there and congratulations! YOu are welcome to visit my blog: www.parenteaufamily-ourlife.blogspot.com. I have two boys and a little girl with DS who is 4 1/2 years old.

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  7. Welcome to the club! I have 2 boys, 3 and 1 and we are expecting a baby girl with DS in October. We are truly blessed to be on this ride! I read your story and felt like I was reading mine. Good luck with the rest of the pregnancy!

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  8. Do not read books. The only books to read are Gifts, and the books that are stories. I read a little of Babies with Down Syndrome, and didn't finish it. It was way to depressing and so not true. You can ask any question on here and someone has gone through it, its wonderful.

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  9. I highly recommend you to get "Road Map to Holland" by Jennifer Graf Gronegerb. She has a blog called "Pinwheels", check it out:

    http://jennifergrafgroneberg.wordpress.com/

    Best wishes :)

    Nikki

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  10. Hi Jenee- I found your blog from another blog that I visit. I read your story and it is scarily familiar. I had a miscarriage before I became pregnant w/ Maddy. (She is also our 3rd child) We found out during the pregnancy that she had an AV canal defect but did not know until she was born that she has DS. ( I had prenatal testing too- but all of mine came back normal) I too was shocked, as I am only 27. Maddy has had 2 heart surgeries- one at 19 days old and the open heart at 3 months old. You can e-mail me anytime if you need to talk to someone who's been there. You are right- your little one is a blessing, and your amazing journey is just beginning.

    Kimy
    itwife@gmail.com
    http://thestagner5.blogspot.com

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  11. I have a 9 mo. old with DS and I'm only 28. I had pre-natal testing which all came back normal. We didn't know until the day Marissa was born that she had DS and we found out the following day about her heart condition. She had heart surgery when she was 4 mo. old. It was devastating, all of it, but she is growing and learning by leaps and bounds. I 100% agree that reading other blogs is so incredibly encouraging, nothing like a doctor's visit. If you check out my blog, back in January, that's when Marissa had her surgery, there's lot of information about her surgery and pictures of what you can expect.

    You and your whole family will be so blessed by your little Kaitlyn. You are starting on the right path looking for positive resources and assistance.

    Please feel free to shoot me an e-mail or just follow my blog as well...

    patricia.heath1@gmail.com
    http://bradleyandpatriciah.blogspot.com/

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  12. Hi Jenee, welcome to the Designer Gene Club! My Lillian is now 16 months and has Ds. We didn't know of her diagnosis until she was born, but she is just Lillian!

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  13. Hi Jenee & welcome to the club! My daughter Bridget is turning three on July 23rd. She is such a huge piece to our family puzzle...we all love her and enjoy her every moment of every day.

    There is so much information and support out here. It looks like you are finding your way through it all. Let me know if I can be of help in any way.

    I look forward to learning more about you and Kaitlyn,

    Lisa
    Bridget's mom
    www.bridgets-light.blogspot.com

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  14. Congratulations!! Welcome to the most wonderful family! Looking forward to following your story.

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  15. Jenee, congratulations on your little girl. We look forward to meeting her. We hope things have calmed down, allowing you the chance to enjoy your pregnancy, monitor Kaitlyn's growth & movement and the anticipation of her arrival! Take care.

    John and Lori

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  16. There is no question that books and websites give factual, dry and unfeeling information. Rarely do they offer the value of what these blogs do, the real life of having a child with Down syndrome. The joy and the fear, the ups and downs, much the same as it is raising any other child. My little Landon is now 16 months old and I love every little piece of him, including that extra chromosome. We were fortunate to miss out on serious heart defects (he had 3 small holes when he was born, all but one have closed). I hope she doesn't mind, but one of the previous commentors, Kimy, is a friend of mine. She has been such a valuable source of information and support to parents of "heart babies" that live in our area. Do contact her if you have any questions. Enjoy your pregnancy and enjoy the birth of your daughter. Congratulations!!

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