Tuesday, February 16, 2010

An All Around Update

On a day to day basis things have been pretty quiet around here, but when you look at the last weeks all put together I think I have come up with enough for a post. So here are a few updates...

My Mom...

Back in November my Mom was diagnosed with Bone Lymphoma. The cancer was pretty aggressive, when they found it it was already in both thighs and her ribs. She began chemotherapy right away. The plan for treatment was 6- 3 week rounds of chemo. The doctor seemed confident that she could "kill" the cancer but said she had to treat it aggressively, and that she did. My Mom is half way done. The chemo has been tough to say the least, she's been hospitalized twice, and the doctor has scaled back on the strength of her treatments each time. My Mom is a petite lady, they could only give her as much as her body could handle. After the third treatment it was decided that they would give her a break and let her regain some of her strength and some of the weight she's lost. This ended up being just what she needed. She was able to put on some weight, get her appetite back, and start feeling better. She went this morning to start her 4th treatment. Last week during her "break" she had a PET scan done to look for the cancer. And with a huge "sigh" I can tell you she had a clean scan, no cancer seen! Thank God! All the horror of the last months is paying off. Thank you to everyone for all your prayers! They worked for Kaitlyn and now they are working for my Mom. She will continue her treatments, but as of now things look good!

Brady and Bryce...

Brady is our 5 year old. The two boys are the best of friends but are polar opposites of each other. Brady is sensitive, shy and quiet in public, but at home he keeps us in stitches. His new found sense of humor is something else. He is so goofy. He's bossy at home and SHY at school. For some reason he really has a hard time opening up at school. It is so hard to watch. We try so hard to give him the tools (words) to be more CONFIDENT! But none the less...he loves school! He is a bright little boy, he learns everything they teach him and more. He's writing sentences, and starting to read, he's way above where he needs to be academically. We are very proud of him, but at the same time sad that he lacks confidence with his peers. His teacher reassures us he is making progress. His shyness baffles us because at home and around friends and family he's so different. He is such a comedian, and is working on becoming a magician, and he LOVES to draw and write. It is so fun to watch him grow into this next stage of boyhood. I love this little man.

Bryce is our 3 almost 4 year old. He and his brother are 16 months apart. He goes to preschool two mornings a week. We both needed this this year. It seems to be just what he needs. He enjoys being with me on his off days and misses his brother terribly when he's at school. Bryce is so different then Brady, they compliment each other well. Bryce is outgoing, silly, but emotional. When I say emotional I say it in all sense of the word. You never have to guess what he is feeling. He's a lover, Mommy's little boy. He tends to be the patient child, but also gets grumpy, angry, frustrated, and he speaks his mind :) This is his best and worst quality. He has grown up so much in the last months. He too is hilarious. He loves music, dancing, and his guitar! He's become quite the entertainer. What melts my heart the most though is the special spot in his heart he has for his baby sister. He's had this since the day she came home. The two of them are going to have something special. He is able to make her smile like no other! I love that little boy.


Can you believe she is 6 months old already! The last months are such a blur. I watch her "Heart Story" movie that I made and lived and feel like I'm watching someone elses life. It is so crazy. The scar on her chest fades daily, she's doing great!

At her last wellness check she weighed in at 13lbs 10ozs. She is gaining and growing wonderfully. She still seems like such a little peanut though. After surgery we learned that she was aspirating. She had such a problem with projectile vomiting the weeks before surgery and chronic congestion. We had her scheduled for a swallow study before surgery but with her surgery date getting moved up it didn't get done until after surgery. The swallow study confirmed what I had thought, she was aspirating! Luckily it wasn't bad enough where we had to thicken any of her formula, instead we had to keep her on a very slow flow nipple and feed her sitting upright. Since surgery we had a follow up swallow study and she did much better. No more aspirating. She also had a 6 month hearing screen. It was recommended since hearing problems can be common in children with Down syndrome. She passed it fine, and we will follow up again at 12 months. Developmentally she is doing new things constantly and getting stronger by the day. An Occupational therapist comes to work with her every week. She is rolling some from her back to her belly, she is reaching and grasping at things. Her muscles in her core and legs have gotten so much stronger. We've started her on cereal and veggies. It took time and patience but she is learning to eat from a spoon. She loves dinner time! She makes each day so much better!

Baby #4...

I can't believe I am 16 weeks pregnant already. Having a busy household make the time fly for sure. Yesterday I had more blood taken for the second part of the sequential screen (We are testing for Trisomy 21 and 18). We should have the results Friday. Friday I am scheduled to have an amniocentesis, I go back and forth daily about whether or not I will have it done. I had the procedure done with Kaitlyn, I hate it, it doesn't hurt, its just my nerves, and the idea of the whole thing, if I want diagnostic results I need to have it done. We will see.

My morning sickness is almost gone. It creeps up on me from time to time. Right now my greatest problem is headaches. They say they should get better after the second trimester. I'm hoping! Other then that things are fine. Hopefully Friday we will get some reassuring news about the health of this baby and maybe even find out the gender. Thanks for following...stay tuned...


  1. Great news on all counts Jenee--prayers are still being said for all of you--How is Blair doing?

  2. It is comforting to hear that all my prayers for you Mom and Kaityn are being answered. I will continue.

    Love, Dale

  3. What wonderful answers to our prayers! I am so excited about the good news on your mom's health. I will continue to pray for baby #4 (and the rest of you)!!

  4. It is a beautiful baby ... God bless her and her family. Congratulations. Att. Lidia